The Lurie Institute for Disability Policy
The Heller School for Social Policy and Management at Brandeis University
The Lurie Institute for Disability Policy is dedicated to improving the lives of people with autism and other disabilities across the lifespan through innovative social polices that foster inclusion into the mainstream of society. The Lurie Institute conducts research on disability policy in the United States with a special emphasis on autism, focusing on the lifespan of persons with disabilities and their families, and analyzing policy options for achieving the broadest integration of persons with disabilities into the mainstream of U.S. society, including their own voices in such analyses.
The Lurie Institute for Disability Policy was created with a generous gift from the Nancy Lurie Marks Family Foundation. Through research, policy development, education, and public engagement, the Lurie Institute provides a comprehensive approach to addressing disability issues across the lifespan. Brandeis’ ongoing scientific research into developmental disabilities, including autism, also informs the Institute’s activities.
The mission of the Lurie Institute for Disability Policy is to promote inclusive and effective policies that improve the well-being of children and adults with disabilities and their caregiving families.
Congratulations to Susan Parish, who has been selected to become the Heller School's next Associate Dean for Research. In this position, Susan will be working with the Research Steering Committee to address current challenges facing research activities at the Heller School and will serve as the school's liaison with Brandeis University's office of research administration.
Susan Parish is excited to be presenting at the First International Symposium on Cancer in Persons with Intellectual Disabilities to be held in Montpellier, France in February 2014. Susan will be speaking about cervical cancer screening for women with intellectual disabilities, and about the Woman Be Healthy studies.
Susan Parish gave a plenary presentation on Health Care and Children with Autism at the Health and Wellbeing Conference held in Toronto November 12-13, 2013. Susan also spoke about Cervical and Breast Cancer Screening for Women with Developmental Disabilities.
When the APHA Annual Meeting came to Boston this past November, Lurie doctoral fellow, Morgan Crossman and research assistant Leah Igdalsky were on hand to manage the social media related to the APHA Disability Section 2013 Chair's Forum, called "The Construction of Disability and Health: The Role of Spaces and Places." They presented at the Chair's Forum, educating attendees on the "buzz" about geography and disability, based on Facebook and Twitter.
Glenn T Fujiura, PhD, was the featured speaker at the Lurie Institute for Disability Policy's annual distinguished lecture on October 29th, 2013. Dr. Fujiura is a Professor of Human Development in the Department of Disability at the University of Illinois at Chicago, and the editor in chief of the journal Intellectual and Developmental Disabilities. The title of his lecture was "The Political Arithmetic of Disability and the Family". He discussed research and policy trends in family support, which is the underfunded service system intended to assist parent and sibling caregivers of people with disabilities. The lecture and the reception that followed was held in the Zinner Forum at the Heller School.
Former Lurie doctoral fellow Maria Timberlake, Lurie Institute Faculty Walter Leutz and Marji Erickson Warfield, and current Lurie doctoral fellow Giuseppina Chiri recently had a paper published in the September 2013 Journal of Autism and Developmental Disorders entitled "'In the Driver's Seat':Parent Perceptions of Choice in a Participant-Directed Medicaid Waiver Program for Young Children with Autism."
Susan Parish was quoted in Philly.com's article, "Disability of 2-year-old raises questions on federal aid programs", which focused on insufficiency with the SSI program for families raising children with disabilities.
Susan Parish delivered a webinar "Women Be Healthy: A Promising Intervention to Promote Cervical and Breast Cancer Screening for Women with ID" for the The Arc's HealthMeet program on October 30th from 2pm-3pm. In this presentation, she reviewedresults from the Women Be Healthy projects and discussed cervical and breast cancer screenings for women with ID and why they are so important.
Susan Parish participated in UMass Boston's Gerontology Seminar Series. On October 7th, she presented on the financial well-being of US parents raising children with developmental disabilities.
Congratulations to former Lurie Insitute post doctoral fellow, Subharati Ghosh, who has accepted a position as an Assistant Professor at the Center for Health and Mental Health at the School of Social Work at Tata Institute of Social Sciences in India.
Former Lurie Institue Research Assistant, Alison Ivie, has been selected as one of the 2014 Women's Research and Education Institutes's Congressional Fellows! Alison is one of five women to be selected and she will be working as a legislative assistant from January through August in Washington D.C.
The US Department of Health and Human Services Health Resources and Services Administration has awarded the Lurie Institute for Disabilty Policy a grant to study Racial and Ethnic Disparities in the Access, Service Utilization, and Quality of Care for US Children with Autism and Other Developmental Disabilities.
Susan Parish is quoted in the August 2013 edition of Psychology Today in an article on how raising an autistic child can affect a marriage. http://www.psychologytoday.com/articles/201306/love-in-the-time-autism
Susan Parish was quoted in the July 31, 2013 Huffington Post's blog Foundations Should Take a Look at the Largest Poverty Minority. Think Inclusively, Act Inclusively written by Claudia Jacobs, Associate Director of the Sillerman Center for the Advancement of Philanthropy at the Heller School.