The Lurie Institute for Disability Policy

The Heller School for Social Policy and Management at Brandeis University

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Starr Center Research Projects

Family Member Roles and Well-Being in Self-Directed Waiver Programs

The overall purpose of this study is to investigate the well-being of family members who are engaged in self-directed waiver programs as either the paid caregiver or the authorized representative. The study will examine waiver programs that serve adults who are aged or have physical disabilities and those that serve adults with developmental disabilities. The specific aims are to: (1) understand how family relationships and different aspects of the family environment are associated with the operation of self-directed waiver programs; (2) examine which aspects of the family environment and waiver program operation are significant predictors of family member psychological and financial well-being and physical/mental health; and (3) identify whether certain program features exacerbate or buffer the impact of the family environment on family member well-being.

Transition from Pediatric to Adult Health Care for Youth with Autism Spectrum Disorders (ASD)

This study is working with community health centers to develop an intervention to facilitate the transition from pediatric to adult health care for youth with ASD. The research team is working with pediatric providers, adult-focused physicians, and families to assess and modify existing transition tools and create innovative ways to implement the use of those tools to facilitate transition within community health centers. The goal is to define an intervention for testing on a larger scale.

The Impact of Parental Military Deployment on Children with Disabilities

Innovative methods will assess the unstudied health care utilization patterns among children of military members ages birth to 17 with significant disabilities, measure the impact of deployment on these utilization patterns and test how aspects of the family health environment influence the effect of deployment on utilization.

A Nurse Practitioner Model for Delivering Primary and Coordinated Care to Adults with Disabilities

The purpose of this planning grant is to design a nurse practitioner-led health clinic to deliver primary and coordinated care to adults with disabilities who participate in day habilitation programs.

Making Healthy Connections: What are the Long-Term Benefits?

The study will assess the extent to which the Making Healthy Connections (MHC) program builds the personal assets and social capital of youth with disabilities and their families and facilitates their transition to adult roles.

Knowledge Advancing Social Justice

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