The Lurie Institute for Disability Policy

The Heller School for Social Policy and Management at Brandeis University

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News Archives 2013

Susan Parish gave a plenary presentation on Health Care and Children with Autism at the Health and Wellbeing Conference held in Toronto November 12-13, 2013.  Susan also spoke about Cervical and Breast Cancer Screening for Women with Developmental Disabilities.

When the APHA Annual Meeting came to Boston this past November, Lurie doctoral fellow, Morgan Crossman and research assistant Leah Igdalsky were on hand to manage the social media related to the APHA Disability Section 2013 Chair's Forum, called "The Construction of Disability and Health: The Role of Spaces and Places." They presented at the Chair's Forum, educating attendees on the "buzz" about geography and disability, based on Facebook and Twitter.

Glenn T. Fujiura, PhD, was the featured speaker at the Lurie Institute for Disability Policy's annual distinguished lecture on October 29th, 2013. Dr. Fujiura is a Professor of Human Development in the Department of Disability at the University of Illinois at Chicago, and the editor in chief of the journal Intellectual and Developmental Disabilities. The title of his lecture was "The Political Arithmetic of Disability and the Family." He discussed research and policy trends in family support, which is the underfunded service system intended to assist parent and sibling caregivers of people with disabilities. The lecture and the reception that followed was held in the Zinner Forum at the Heller School.

Susan Parish delivered a webinar, "Women Be Healthy: A Promising Intervention to Promote Cervical and Breast Cancer Screening for Women with ID," for the The Arc's HealthMeet program on October 30th from 2pm-3pm. In this presentation, she reviewed results from examining the Women Be Healthy projects and discussed cervical and breast cancer screenings for women with ID and why they are so important.

Susan Parish participated in UMass Boston's Gerontology Seminar Series. On October 7th, she presented on the financial well-being of US parents raising children with developmental disabilities.

Former Lurie doctoral fellow Maria Timberlake, Lurie Institute faculty Walter Leutz and Marji Erickson Warfield, and current Lurie doctoral fellow Giuseppina Chiri recently had a paper published in the September 2013 Journal of Autism and Developmental Disorders entitled "'In the Driver's Seat': Parent Perceptions of Choice in a Participant-Directed Medicaid Waiver Program for Young Children with Autism."

Congratulations to former Lurie Institute post doctoral fellow Subharati Ghosh, who has accepted a position as an Assistant Professor at the Center for Health and Mental Health at the School of Social Work at Tata Institute of Social Sciences in India.

Former Lurie Institute Research Assistant Alison Ivie, has been selected as one of the 2014 Women's Research and Education Institutes's Congressional Fellows! Alison is one of five women to be selected and she will be working as a legislative assistant from January through August in Washington, D.C.

The U.S. Department of Health and Human Services Health Resources and Services Administration has awarded The Lurie Institute for Disability Policy a grant to study Racial and Ethnic Disparities in the Access, Service Utilization, and Quality of Care for US Children with Autism and Other Developmental Disabilities.

Susan Parish was quoted in the July 31, 2013, Huffington Post blog Foundations Should Take a Look at the Largest Poverty Minority. Think Inclusively, Act Inclusively, written by Claudia Jacobs, Associate Director of the Sillerman Center for the Advancement of Philanthropy at the Heller School.

The Lurie Institute for Disability Policy is pleased to again assist the Nancy Lurie Marks Family Foundation in hosting its annual summer workshop. This year's event, Aging Well With Autism (55 and Older), was held on Thursday, July 25th at the Heller School for Social Policy and Management.  The purpose of the meeting was to discuss progressive planning initiatives relevant to older adults with autism. Topics addressed included medical care, health, and wellness for autistic adults over 55, transition and life planning supports, and innovative approaches to housing and community living. Guest speakers included Tamar Heller, PhD, Nora Friedman, MD, David Tesini, DMD, Trang Nguyen, BA, Beth Marks, RN, PhD, Len Fishman, Susan Frazier and Brenda Eheart, PhD.

photo maria timberake getting award

The Lurie Institute is delighted to announce that former Lurie Institute Doctoral Fellow Maria Timberlake, PhD, has been awarded a 2013 Research Hero Among Us award on behalf of the AAIDD Northeast Region X. Maria is currently an assistant professor at SUNY Cortland in New York.

The Handbook of Minority Aging includes a chapter entitled "Older Adults of Color with Developmental Disabilities and Serious Mental Illness: Experiences and Service Patterns," co-authored by Lurie Institute post-doctoral fellow Subharati Ghosh, PhD, MSW.

The Lurie Institute is delighted to co-sponsor a Senatorial Candidates Forum on Disability Issues at Dwight Hall at Perkins School for the Blind in Watertown, MA, on Monday, June 3, 2013, from 11:00 am – 12:30 pm.  Congressman Edward Markey and a representative for Gabriel Gomez will be on hand to discuss disability issues.

Susan L. Parish presented "Preventive Health Care for Women with Developmental Disabilities" at the 2013 AADMD Annual Conference on on April 27th in Mesa, AZ.

On Thursday, April 25th, Susan L. Parish presented a poster entitled "Cervical and Breast Cancer Screenings for for Women with ID" at the Oregon Health and Science University national conference on Health Disparities Research at the Intersection of Race, Ethnicity and Disability in Washington, D.C.

Autism in Massachusetts - A Blueprint for the Future will be held in the Shapiro Campus Center on March 28th at 7pm. The Lurie Institute for Disability Policy is delighted to co-sponsor this informative presentation of the findings and recommendations of The Autism Commission.

The Lurie Institute is pleased to announce that Lurie Institute Doctoral Fellow Maria Timberlake has successfully defended her dissertation, "Academic Content and Students with Significant Cognitive Disabilities: How Teacher Interpretation and Choice Impact Access to the General Education Curriculum."  Maria is currently an assistant professor at SUNY Cortland in New York.

Lurie Institute director Susan L. Parish has been appointed by the National Research Council as a member of the Steering Committee for the Committee on National Statistics, to plan the Workshop on Research Gaps and Opportunities on the Causes and Consequences of Child Hunger.

The Lurie Institute for Disability Policy will reschedule the screening of the film "Anita" for September 2013.  More specific information about the date, time and place will follow. In "Anita," acclaimed Argentine filmmaker Marcos Carnevale tells the remarkable story of a young woman with Down Syndrome whose routine life in Buenos Aires is tragically disrupted by the horrific 1994 bombing of the Argentine Israelite Mutual Association. As Anita wanders through the city following the attack she not only learns to care for herself, but touches the lives of those around her. A panel discussion about Down Syndrome will follow this inspirational film.

The Lurie Institute for Disability Policy sponsored a film night on Friday, January 25th at 6pm. "The Sandy Houghton Story: An Inspirational Journey" recounts the personal, professional and emotional barriers that self-advocate Sandy Houghton encountered as a person with cerebral palsy and as a mother of a daughter with a disability, and pieces together the experiences that shaped her life. We were delighted to have Sandy remain with us following the screening to answer questions the audience had about her life and the making of the film.

Susan Parish and colleagues' work on "Racial and ethnic disparities in quality of health care among children with autism and other developmental disabilities" was featured on the February 2013 Maternal and Child Health Bureau Health Resources and Services Administration Research Program website.

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