The Lurie Institute for Disability Policy

The Heller School for Social Policy and Management at Brandeis University

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National Research Center for Parents with Disabilities  (National Institute for Disability, Independent Living and Rehabilitation Research  NIDLIRR)

The National Research Center on Parents with Disabilities is a cross-disability initiative guided by the ethos of the disability community, “nothing about us without us.” Through research and advocacy, the Center provides instruction and information about health and parenting services for parents with disabilities and their families.

Grant Number: #90DPGE0001

This cross disability initiative is a collaboration among strong partners from Brandeis, Dartmouth, the Great Lakes ADA Center at UIC, Rochester Institute of Technology and the  Universities of Michigan, Minnesota, and Massachusetts  Appendix 1). Led by a national advisory board of racially and ethnically diverse parents with a range of disabilities. The PEP Center is also supported by 15 national organizations that have agreed to serve as dissemination partners.

This project aims to address knowledge gaps regarding the experiences, challenges, and needs of parents with disabilities and their families through exploratory population based research and the systematic analysis of state legislation and policies. We also plan to contribute to the research base of interventions for parents with disabilities and their families through the development, adaptation, testing and scaled up of intervention models for diverse groups of parents and their families. Finally, our goal is to systematically translate evidence based knowledge and make it accessible to diverse stakeholders e.g., parents and their families, child welfare professionals and attorneys, advocates, practitioners, and policy makers) through state-of-the art,  empirically informed training, technical assistance, dissemination and utilization  activities.

Our  goal  is  to  support  people  with  disabilities  in  achieving  their  parenting   goals  by  supporting  them  to  function  optimally  in  the  domains  of  challenge  they  identify.

Knowledge Advancing Social Justice

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