The Lurie Institute for Disability Policy

The Heller School for Social Policy and Management at Brandeis University

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National Research Center for Parents with Disabilities  (National Institute for Disability, Independent Living and Rehabilitation Research  NIDLIRR)

The National Research Center on Parents with Disabilities is a cross-disability initiative guided by the ethos of the disability community, “nothing about us without us.” The mission  of the center “is to address knowledge gaps regarding the experiences, strengths, and challenges of parents with diverse disabilities and their families through exploratory population-based research to inform policy, practice, and advocacy, the development and testing of interventions for parents and family members; and the systematic translation of evidence-based knowledge into accessible resources for wide dissemination.”

This cross disability initiative is a collaboration among strong partners from Brandeis, Dartmouth, the Great Lakes ADA Center at UIC, Rochester Institute of Technology and the  Universities of Michigan, Minnesota, and Massachusetts and is led by a national advisory board of racially and ethnically diverse parents with a range of disabilities. The Center is also supported by 15 national organizations that have agreed to serve as dissemination partners.

This project aims to address knowledge gaps regarding the experiences, challenges, and needs of parents with disabilities and their families through exploratory population based research and the systematic analysis of state legislation and policies. We also plan to contribute to the research base of interventions for parents with disabilities and their families through the development, adaptation, testing and scaled up of intervention models for diverse groups of parents and their families. One of the project's goals is to develop and test the efficacy of a parent peer specialist intervention for parents with psychiatric disabilities, building on current mental health models. Similarly, we are reviewing existing peer supports for Deaf parents and exploring emerging technology-based intervention options, to adapt and field test an innovative peer support intervention for Deaf parents. Finally, our goal is to systematically translate evidence based knowledge and make it accessible to diverse stakeholders e.g., parents and their families, child welfare professionals and attorneys, advocates, practitioners, and policy makers) through state-of-the art,  empirically informed training, technical assistance, dissemination and utilization  activities.

Our  goal  is  to  support  people  with  disabilities  in  achieving  their  parenting   goals  by  supporting  them  to  function  optimally  in  the  domains  of  challenge  they  identify and create a more knowledgeable professional workforce geared by evidence-based research. 

Grant Number: #90DPGE0001

Knowledge Advancing Social Justice

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